Current location:	Lying in my bed
Current mood:	restless
Current music:	Razorlight America

omg not been on here for ages
OMG its been ages since ive came on here.
So guess i will fill in whats been happning.
I went down to Leeds for the inpatient assessment, physio O.T etc, they said i would be in for 3 weeks max, well that 3 weeks turned into 7 weeks. The first day i got down their i dislocated my shoulder badly so they sent me to the LGI was in there for 4 days, then when i got back to chappel allerton things were going pretty good, i met jayne from the hypermobility boards, she was in the same time as me it was mint. Then i went in the hydropool and dislocated my hip and they think it trapped a nerve when it went back in and i couldnt walk, so was stuck in a wheelchair for 5 weeks needing help with everything. Prof Bird changed his mind from me having mild EDS to being severly effected. My thumbs and ankles were bad aswell so they refferd me to a hand surgeon for my thumb and foot surgeon to try sort out my ankle and feet.

For my shoulders they refferd me to the Royal National Orthopedic Hospital in London, yep long way to blooody travel.
I was dwn there bout a month ago getting camera's put in both my shoulders, then they said i might benefit from botox injections to paralize the muscles cause apperntly its a muscle pattern problem and then 3 weeks inpatient rehab (again but in london this time). So i had the Botox injections 2 weeks ago and im on my way down to London for the rehab this sunday.

In between times i got discharged from physio back home cause she feels theres nothing more she could do with my hip and had to go back down to leeds to see cath the phytsio and got some new exercises from her, Had to cancell going down to sheffield
to see my friend Kirsty who i made really good friends with in leeds when i was down (shes a nutter )
And ended up in hosp up here cause i couldnt swallow and was dehydrated, turns out its another complication of EDS. The thing in ur throat that stops the food and liquid going into your lungs is to floopy, so got to see a apeech therapist.

Niamh is now at school and she loves it, she is nearly 5 now
Ellis is 6 and a half months old and is sooo cute, always smiling and laughing.

Im stuck on crutches, everything going wrong dislocating constantly, Tourette's and OCD getting sooo much worse (im dx with EDS now)
And thats about all.

I wont leave it so long till i write next time.

Oh had to get our dog Jarvis put down he slipped a disc in his back and severd his spinal cord. So unfair i miss him so much he was only 4